Remembering Abigail
May 24, 2012, 12:48:33 AM *
Welcome, Guest. Please login or register.

Login with username, password and session length
News: Welcome to Our Forever Babies, a supportive home on the web for anyone who has lost a baby at any stage of pregnancy or after birth.
 
   Home   Help Login Register  
Pages: [1]   Go Down
  Print  
Author Topic: My twin boys died- Joel aged 3 and a half days and Luca aged 3 wks 6 days  (Read 684 times)
ceebee
Jr. Member
**
Offline Offline

Posts: 9


« on: January 23, 2009, 07:30:29 PM »

Hi, I??m new to this forum. I??m Carly. I had my ID twin boys on 15th November 2008, 28 wks and 4 days into pregnancy. Pregnancy was plain sailing- no probs at all apart from an infection which was quickly cleared up with antibiotics. On 13th Nov, I had a little tiny show, so went to the hospital (I live in spain). They placed monitors on me for 40 mins, checked me and did a scan and said it was "normal to have the ache own below Like i did with twins" and as I??d only had a san 2 days before and everything was fine they made me feel like I was wasting their time "You only had a scan 2 days ago and all is good" to quote!
I was told to rest alittle more- nothing else. Went for 3D scan next day- all ok- could only see one of my little boys as the other was facing the back.
Had back ache that night but after a bath went to bed and it disappeared during the night.
Woke on and off during night, underwear a little wet at one point. Having tummy pains but thought I was constipated as I was on extra iron but after being awake from 5.30am and pain getting worse, at 6.30am we left for hospital.
Waters broke fully in car and screamed at my partner to hurry up as I could feel something coming out. Got to hospital at 7.10am, wheeled in and told to lie on monitoring bed (luckily there was the only english midwife on duty) and I told them I could not lie still. As I took my clothes off I could see the membranes coming out. Off to the delivery suite and after a few pushes, Joel was born at 7.30am weighing 1, 215kg. He was whisked off before I got to see him. Contractions more or less stopped so they gave me some medication. Didn??t really work but pushed Luca out into the world at 7.35am, weighing 1,226kg. He was whisked away too. After delivering the placenta I was put in another room, my mum and partner were allowed in then. They brought us some forms to sign so they could take my babies to another hospital (100km away). My partner went to see the boys and after a long wait he saw Luca in a portable incubator as he left for the other hospital. I didn??t get to see him before he went. I was moved to my room and I managed to see Joel before they tranferred him to the other hospital.
My friend came and spoke to the staff who said my partner should go to the boys- I wasn??t allowed until the following day. The boys had developed Twin to Twin Transfusion in labour or late pregnancy, and had both got bleeds on the brain (Joel had two, one either side, and Luca had one on the left) Joel was marked Level 4 (4 being the worst) and Luca 3.
I finally got to see my boys the following day when I was allowed to leave the hospital for the day but had to return on the night. The prognosis for Joel was very bad. Sadly he had another bleed on the 2nd day of his life and died aged 3 and a half days.
Luca responded well and was taken off the ventilator. He put on weight and had my expressed milk. I was allowed to do Kangaroo Therapy (skin to skin) with him for 3 hours everyday. The doctor was so pleased with him and the clot had shrunk and he was showing no signs of having any problems. Then 3 weeks and 4 days old, he had gas in his tummy. He was xrayed but it only showed gas. He cried and cried but nothing would sooth him. At 10.30pm on 10th Dec we got a call to say they were taking him to another hospital as he possibly needed surgery. We got to the hospital 3 hours before Luca. We learnt he had an infection in the tummy, it burst his small intestine and had led to peritonitus. He died Friday 12th December aged 3 weeks 6days. The change had been so quick- when he arrived at the hospital, only a few hours after we had seen him he looked so different. He looked just like Joel had, before he died. I knew he had fought enough and we told him to go and find his brother.
I feel so sad. It is 6 weeks tomorrow since Luca died, and 10 weeks next Tuesday since Joel died. They were so perfect and so strong. I am so proud to be their mummy but just wish they were still with me now.
I??ve set up pages on gone too soon for them, but nothing really seems to help. Not knowing Why they were born so early makes me feel so bad. But if they hadn??t been born when they were, maybe I wouldn??t have had anytime with them because teh TTTS could have killed them both. Nothing makes sense. Why when Luca was doing so well, would God take him too?
So sad :-(
Logged
Bretts mummy Emma
Moderator
Hero Member
*****
Offline Offline

Posts: 6826


Sound asleep in lullabies dreams


WWW
« Reply #1 on: January 23, 2009, 07:35:51 PM »

  to OFB Carly xxxx

I am so saddened to read your story you have two very brave baby boys who will be playing together up on the clouds 

I hope that you find the love and support here that I have xxxxx
Logged
suzanne
Hero Member
*****
Offline Offline

Posts: 2653


Mummy's little angel


« Reply #2 on: January 23, 2009, 07:46:02 PM »

  carly, so sorry to hear about your little boys. they were real wee fighters.  kis
Logged
mel - jakesangelmummy
OFB Support Team
Hero Member
*****
Offline Offline

Posts: 10648


Jake, Always Loved and Missed until we meet again


WWW
« Reply #3 on: January 23, 2009, 10:01:22 PM »

  Carly.

Im so sorry that you have had to join us here.

Your boys sound like such brave little fighters. Im sure you are very proud of them.

I look forward to getting to know you better

 kis
Logged
marie~elises mummy
Hero Member
*****
Offline Offline

Posts: 2496

mummy missies you darling


« Reply #4 on: January 23, 2009, 10:23:11 PM »

so so sorry to hear of the loss of your 2 beautiful little boys.  blfl blfl
Logged
***clairelouise-finlays mummy ***
Hero Member
*****
Offline Offline

Posts: 4713


my beautifull baby boy finlay paul buttress


WWW
« Reply #5 on: January 23, 2009, 11:27:18 PM »

 kis thinking of you and your little boys 
Logged
Randivw
Full Member
***
Offline Offline

Posts: 67


my tattooo for baby


WWW
« Reply #6 on: January 24, 2009, 03:19:09 AM »

I am so so sorry for your loss I can't even begin to imgaine the pain you're in and what you're going through, the fact that you're able to talk about this shows me that your are so strong. I don't understand why God does anything, and it sucks, I lost my sister when i was 4 and she was 8 and i just recently miscarried twins. I think for you to let Luca go be with Joel was amazing as you didn't want to see your son suffer, i am so so sorry and i wish i could hug you and cry with you. Praying for you and your family! 
Logged
GillyF
Moderator
Hero Member
*****
Offline Offline

Posts: 291


My lark. My angel. My boy.


« Reply #7 on: January 24, 2009, 12:04:31 PM »

Oh, Carly.

Most of the time this thread ticks along, sometimes it can be very quiet, and then, bang, in comes a message with the worst news I think it is possible to share on  OFB: the loss of two precious babies. Our hearts go out to you and your partner, they really do. 

It is terrifying when things go wrong very early in pregnancy, and it is unforgivable for medical staff to behave as if it is no big deal when the lives of the unborn are at risk and the mother is in a state of great distress. And sadly, no matter where you live, when babies need special care and specialist services the probability that they will have to be moved long distance is very real.

Forgive me if I don't express this well, but while it is wonderful that you had those weeks with Luca it is also exceptionally unfortunate that  after Joel's death you had quite a long period of time when everything  seemed to be going well for him. Because after you lose one twin you are utterly obsessed with the survivor's welfare, and staff will have been doing their utmost to accentuate the positive and lift your hopes and spirits. So to then have things turn so quickly, as they can with very premature babies, is just ... there aren't words that can truly describe how awful it is. They can't. My boys were born at 30 weeks, and 5 days later their consultant expressed his delight at their progress and for the first time in 7 months I told myself everything would be ok. But then the next day my son, Guy, had blood in his stools and that was it - transfers, ambulances, talking to surgeons and, as you say, Carly, such a change in his appearance. And then he was gone. My little lark was gone.

It is not a question of God's will, it is a question of vulnerablility. And luck. Yours and your babies'. And it is not that some babies are stronger fighters than others, it is that they are all tiny and extremely fragile and that modern medicine can do incredible things but sometimes it just isn't enough. Our babies suffer and die and we are left heartbroken and unable to believe that it should have happened to our loved ones and to us. It is only natural to ask why us, why our babies, particularly when we hear so often of other premature babies surviving. It isn't fair, it is cruel, and it's immensely difficult to live with.

I wish with all my heart I could lift you, but I feel compelled to tell you the truth in the desperate hope that it might offer a little bit of help because you should know that the feelings you have now will be with you for a long time to come, probably the rest of your life. Because you have loved and lost two very precious children. Other people will try their best to soothe you with assurances that it will get better, they will desperately want to believe that for you, but the honest truth is that you will grieve deeply, you will go through some very hard times because everything that happened will always be crystal clear to you, your body and heart will ache for your sons, and all you can do is your best - and remind yourself that you did your best. You will be hard on yourself, you will be angry, you will always carry in you a deep sadness, but you can only do your best to carry on because you can't do anything else. The word tragedy is used all too often these days, but the death of a baby is a tragedy, and you have suffered terribly. I'm sorry if I'm not doing a very good job here, but tears don't help when you're trying to type and the news of the loss of your sons is deeply upsetting to anyone who knows how it feels to lose a child. People think you move on, they might even ask you why you haven't moved on. People on OFB complain of it all the time, and only the other day, an embryologist, a man who makes his living out of people struggling to have children, someone who should have known better, said to me 'Surely, you've moved on by now?' when we established that our sons were born on the same day nearly two years ago. You don't 'move on', you grieve, you do your best, and you remember the children you loved more than life itself. They weren't ex-boyfriends!

In my newspaper the other day, a journalist who had been so struck by a peeling headstone he had seen said that he was writing about it so as to preserve it electronically, it had touched him so much. It marked the grave of a baby girl who had died at 8 weeks old. 'Touched the Earth and Gone to Glory' her grieving parents had had inscribed in the 1800s.  And that's just it - our babies Touched the Earth, Captured our Hearts, and are gone somewhere we cannot but sure, but we hope it is safe and glorious. That is the least they deserve.   

I am so very sorry for your loss, Carly, and we are all here for you whenever you need us.

Rest in peace Joel and Luca.

best wishes,
Gilly
Logged
emilysmommy6707
Newbie
*
Offline Offline

Posts: 2


« Reply #8 on: January 25, 2009, 01:21:19 AM »

i am sorry that you lost your twins. it breaks my heart. my twins were born june 7, 2007 they were 6 1/2 weeks early. patsy was born alive. emily had passed 10 weeks prior. emily passed away from ttts. my heart goes out to you it truely does. i wish there was more info about that rare syndrome. they are playing in god's beautiful garden with all the other angel babies and they are watching over us mama. may god bless you and keepyou safe~~hillary
Logged
mummy of twin angels
Hero Member
*****
Offline Offline

Posts: 214



« Reply #9 on: February 19, 2009, 10:18:29 PM »

  Hello Carly

i'v just read ur post and it just brought everything back to me - the realisation of being in labour was exactly the same....and on twin being medically better than the other thinking they wud b ok is the same too - i still am not over it and it has been two years on june 19th! wot i hav realised is talking helps and i love talking about them, if u need to or want to talk then please e-mail me!

love to u and ur family hun
Charlotte xx
Logged
Pages: [1]   Go Up
  Print  
 
Jump to:  

Powered by MySQL Powered by PHP Powered by SMF 1.1.11 | SMF © 2006-2009, Simple Machines LLC Valid XHTML 1.0! Valid CSS!