You tube video of Belle

[Belles Mummy]

Hi Ladies,

I just wanted to let you know that I have posted a video on Youtube of all our lovely pictures of belle and also would like to ask you to sign a Petition to cure Sma which is what Belle had and sadly took her precious life, Details are on the video, Its Title is My Beautiful Belle Sma.

Many Thanks,

Sally xxxxx

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[Bretts mummy Emma]

Sally it is a beautiful tribute to your gorgeous daughter  it has me in tears now  I am so sorry that she couldn't stay xxxxxx

[Pamela]

Those Eyes and that smile, just beautiful! wish she never had to leave you xx

[Jen]

Sally

Belle is adorable. It is so hard to believe that she is not here with you. She looks so healthy in all her pictures - simply a beautiful little princess.

You have done a wonderful job of her video. I don't know if you know the site You are not allowed to view links.
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www.onetruemedia.com

You can create montages on it and it has loads of little effects you can use - like zooming in and out of photos etc.

I had never heard of SMA before and have signed the petition in memory of your beautiful daughter.

Have you considered starting a petition in the UK too? You can do so on the Downing Street website You are not allowed to view links.
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We would certainly help you promote it by sending out the details to all our members and asking them to send it on to their family and friends. We could also promote it through our facebook group. I can't believe that it claims so many lives and most of us have never heard of it. I am not sure our government is great at listening to petitions but it would raise awareness among so many people which is a great first step.

Thank you for sharing Belle's video with us.

[Olliemam+1]

Sally

What can I say about your beautiful Belle that I have not already said xxxxx.  I am just so so sorry that she is not with you and all of her special family today 
 
Off too sign the petition.

Take care

Dawn xxxxx. 

[***clairelouise-finlays mummy ***]

  kissis to you and bella ,a true angel x

[Laura~Tyler&Taylor'sMommy]

Belle is absolutely gorgeous, it's a beautiful tribute Sally 

[Belles Mummy]

Thanks so much to everyone who has signed the Petition so far....I hope to get as many signatures as I can to stop the many families suffering out there.

Jen you are so right Belle looks so healthy in all her pictures and she was up untill the last few days of her life, That is the thing with SMA though you dont know as they are so healthy, Bright, Knowing, Happy, Lovable and perfect, Just like any other baby only with one bad, Horrible, Nasty, Awful Gene! That will probably take their life before they reach their first Birthday

I didn't know about the Petitions at Downing street I will look into setting one up and would very much appreciate the support Thank you Jen for letting me know about this.

I am so glad I found this website, The support is fantastic and would like to take this oppotunity to say Thank you for all the support I have recieved from you all  

[Bretts mummy Emma]

Sally we are all here for you sweetie xxx your beautiful Belle led you to us and we will look after you xxxxx